Preemie Adventures
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Non-Profits and Resources
TINY MIRACLES FOUNDATION
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The Tiny Miracles Foundation (TTMF) is a nonprofit charity based in Fairfield County, Connecticut dedicated to helping families with premature babies. TTMF programs were developed by parents of premature babies to offer comfort, support, guidance and hope.
NICU CHEER
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​Based out of Melbourne, Australia; NICU Cheer provides peer to peer support for NICU parents. They donate gift bags full of luxury goods and treats for families of sick or premature families. They deliver over 1,000 bags to NICUs and Special Care Nurseries. Click on their logo to learn more about their amazing work, volunteer or donate.
TODAY IS A GOOD DAY
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The mission of Today is a Good Day is to provide personal and financial support for families who experience the Neonatal Intensive Care Unit (NICU). They provide resources, care packages, parental support and even host podcasts supporting NICU families.
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THE NICU DOC
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The NICU can seem overwhelming for families, trainees, and general health professionals. The NICU Doc was created by a neonatologist, an expert in NICU medicine and the care of healthy and sick babies, so you can find all the information in ONE place.
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GRAHAM'S FOUNDATION
Our vision is a world where no parent goes through the experience of prematurity alone. Our mission is to support, comfort, inform, and guide families who experience a premature birth. We collaborate with the healthcare community and parents of preemies to improve the well-being of preterm babies and families.
MADHATTER KNITS
Madhatter Knits is a non-profit organization dedicated to supplying knit hats for premature babies in the Neonatal Intensive Care Unit (NICU) and empowering pregnant women. Our goal is that critically ill infants and their families in the NICU will receive our love and support through their fragile beginnings.
Motor Babies
We Teach You How To Play With Your Baby to Achieve Their Developmental Motor Goals. Bundles are Available for Ages 0 - 12 Months and Include Target Toys and an Instructional Guide Developed by a Licensed, Pediatric Physical Therapist
Preemies of the Carolinas
We are a nonprofit that helps NICU families both in the Carolinas and Nationwide. We are always in need of those that crochet, knit, sew and quilt.
Eternal Bonding ​​
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VIP Concierge services helping parents transitioning babies from hospital to home. Services include advocacy and collaboration with your medical team, health/welness coaching and other transitional services.
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Micha Clark​​
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Provides assistance for NICU parents during and after their journey. She provides coaching, advocacy tips, breastfeeding assistance and a variety of other helpful services.
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MomsCo ​​
MomsCo is a 501C3 Nonprofit Organization in the United States that offers a virtual program for Moms who have completed their NICU journey and preparing them to return to the workforce. Our self-paced program to help Moms gain skills and knowledge to fill job and skill gaps
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Project NICU​​
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Is dedicated to supporting families with children in the NICU and medical professionals who care for them. We connect with NICU parents and offer resources to support them during their journey both in and beyond the hospital. We recognize the amazing medical teams that care for these families and celebrate them.
MyVision.Org​​
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MyVision is a free digital resource led by expert ophthalmologists and optometrists to provide trusted information on eye health and vision. Children's eyes and their vision develop gradually. As they age, conditions common to their age group may arise, making eye health checkups pertinent for a healthy childhood.
Dear NICU Mama​​
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Dear NICU Mama is a women-run organization designed to connect, encourage, and create community with past and present NICU moms. Through Celebration Photoshoots honoring NICU grads and their mothers, educational and peer-support events, online advocacy, and their signature podcast, Dear NICU Mama reaches thousands of women each month
Preemie World ​​
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The PreemieWorld forum, newsletters, and social media outlets seek to address the medical community as well as the general public and educate both parties on how best to offer support to preemie parents. Our mission is to relay the medical information parents receive in layman’s terms, and build a bridge between the parenting and professional worlds that surround premature infants.
Lily's Hope Foundation​​
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Lily's Hope Foundation answers the emergency needs of families with premature babies. Lily's Hope accomplishes this by providing resources, aid and hope to families with premature babies through our Preemie Pantry and our Packages of Hope program.
The Early Bird Project​​
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The Early Bird Project builds care packages for families experiencing a stay in the NICU. Each package contains items that are meant to help parents navigate the difficulties that come from that experience. From notebooks to chapstick to swaddle blankets, each item is carefully selected and packaged with love from a fellow NICU parent.
Matronee​​
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Matroneé began as an answer to a need. We experienced the unnerving scalp IV, that constant concern. We sell caps with a functional purpose, sure. But we also believe in the power of putting it on as a deep-breath moment.
The Potato Head Project​​
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The Potato Head Project exists because it gives you hope. Hope when you have no idea what is going on and no idea where to turn. It gives you something to look forward to, to connect people to (without them having to endure the NICU themselves), it gives you something to hold on tight to because the truth of the matter is, in the NICU hope is all you have.
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Penelope Project​​
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Penelope Project's mission is to provide support and education to help alleviate stress of NICU families. Let us teach you to be a NICU expert and support you when you feel alone. Your search is over You've found your village.
PreeMe+You​​
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NICU health journeys are overwhelming, complex and emotional. PreeMe+You’s holistic eco-system of communication and interaction care tools are created from primary research and expertise in neonatal medicine and the science of human interaction and communication.
Tiny Living Legends​​
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Facilitate continuity of care and a strong support system for parents/caregivers to reduce readmission.
Preemie Footprints
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The mission of Preemie Footprints is to provide comfort to families of all preemies and also to raise awareness about the issue of prematurity. This is accomplished through donations to hospitals of tangible items such as appropriate-sized hats, blankets, and quilts.
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March of Dimes​​
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March of Dimes leads the fight for the health of all moms and babies. We support research, lead programs and provide education and advocacy so that every family can have the best possible start. Building on a successful 80-year legacy, we support every pregnant person and every family.
THE NICU DAD
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The NICU Dad is blog for helping to support NICU Dads. The NICU Dad is a place where NICU Dads can come to read and share stories, get information, or just come and see that you are not alone! There are others who are riding that same NICU roller coaster ride as you.
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WELCOME PREEMIE
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Welcome Preemie provides clothing and accessories that allows easy access to intravenous lines (IV tubes), feeding tubes, electrocardiogram wires and any other external devices in use while babies are in the hospital. For Massachusetts residents, they also provide professional baby-sitting at your home providing registered nurses with years of experience caring for infants.
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BIRTH INJURY CENTER
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They are an advocacy center whose mission is to assist anyone who was been affected by a birth injury. Their website is a compilation of information around the different types of injuries. They offer resources to assist the injured and their families.
Rooks Books
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Rook's Books Publishing, LLC endeavors to tell the stories of triumph seldom heard, and to motivate families and caregivers of all types. Let's come together to ADVOCATE for one another, EDUCATE ourselves and others on various medical conditions, and CELEBRATE the milestones and successes of our community
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OLIVER'S LITTLE WARRIORS
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​is a 501 (c)(3) nonprofit organization that supports Kansas City NICU families and raises Group B Strep awareness. They fill their NICU Care Packages with essential items to help families through the difficult journey of the NICU.
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PROJECT SWEET PEAS
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​Project Sweet Peas is a registered 501(c)3 nonprofit organization incorporated in the state of Pennsylvania. Their mission is to empower and support families of fragile infants, and to inspire hope through remembrance for those affected by pregnancy and infant loss.
Tiny Lives Trust
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The charity supports premature and sick newborn babies as well as their ​families at the RVI in Newcastle (United Kingdom). They work to supply grants, parent support, care packages and other activities.
Trust Your Strength
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Based out of Atlanta, Trust Your Strength is a 501(c)(3) non profit organization dedicated to creating awareness of the mental support needed in the NICU and making a difference for families in need.
Cerebral Palsy Guidance
​ Cerebral Palsy Guidance was created to provide answers and assistance to parents of children with cerebral palsy. Our goal is to reach as many members of the cerebral palsy community as possible, building up a network of support, as well as providing necessary assistance.
Mom and Me LLC
​ Dr. Jess Daigle is a board-certified pediatrician and Nicu/pediatric hospitalist who is driven to help moms and babies, term or premature, THRIVE in the 4th trimester and beyond. Her desire is to minimize the strain on moms mentally and physically in the postpartum period and help them feel confident taking care of their babies and themselves.
Saul's Light
​ Saul's Light is a New Orleans-based nonprofit that provides support and community to families with babies in the neonatal intensive care unit (NICU).
Carters Cause
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We're on a mission to provide resources and support to parents grieving from infant loss, parents living the NICU journey, as well as the family and friends who form their support group. We'll share tools to help everyone - parents, extended family, friends, and the world.
ICU Baby
ICU baby is on a mission to unite NICU families and provide them with financial, emotional and informational support so that families and babies can thrive together in the NICU.
The Superhero Project
The Superhero Project Inc., a 501(c) (3) tax-exempt organization, began in early 2015. They provide support for NICU families through a variety of programs.
Ethan's Hope
Ethan’s Hope’s goal is to help reduce a family’s needs while in the NICU which can vary from lodging, travel/transportation, gas, loss of income, insurance deductibles, medical needs and supports after the NICU, just to name a few.
I See You NICU
North Florida-based nonprofit striving to develop a support network for past,
present, and future NICU families.
A Mother's Chance
A Mother's Chance Non-Profit provides bereaved families with a safe haven - offering emotional support groups, practical resources, and access to essential information. We empower families to navigate their grief and find hope in their journey.